Huntington's Disease Registry
“Enroll -HD: A Prospective Registry Study in a Global Huntington's Disease Cohort”
Enroll-HD is a longitudinal, observational, multinational study that integrates two former Huntington's disease (HD) registriesa?"REGISTRY in Europe, and COHORT in North America and Australasiaa?"while also expanding to include sites in Latin America. More than 20,000 participants have now enrolled into the study. With annual assessments and no end date, Enroll-HD has built a large and rich database of longitudinal clinical data and biospecimens that form the basis for studies developing tools and biomarkers for progression and prognosis, identifying clinically-relevant phenotypic characteristics, and establishing clearly defined endpoints for interventional studies. Periodic cuts of the database are now available to any interested researcher to use in their research - visit www.enroll-hd.org/for-researchers/access-data/ to learn more.
Enroll -HD: A Prospective Registry Study in a Global Huntington's Disease Cohort