Burden of Access in Duchenne Muscular Dystrophy in the US
common.study.values.description
“The Burden of Access in Duchenne Muscular Dystrophy in the US”
This study is being conducted to determine if DMD patients / families and healthcare providers experience burdens related to access, and if so, to identify them, and to determine life impacts to the patient, if any, of these burdens. Data from healthcare providers will be collected by an online survey and from patients/families by one on one telephone interview.
common.study.values.location
participant.ui.study.affiliations-map.online-study.header-virtual
participant.ui.study.affiliations-map.online-study.text
common.study.values.methods
common.study.methods.has-drugs-no
common.study.methods.is-healthy-no
common.study.methods.no-methods
participant.views.study.view.additional
participant.views.study.view.scientific-title
The Burden of Access in Duchenne Muscular Dystrophy in the US. A Qualitative Assessment of the Impact of Access on the Lives of Families Affected by DMD and Their Healthcare Providers.
common.study.values.clinical-trial-id
NCT03951675
participant.views.study.view.id
b4xP7b
